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    MUSCULAR DYSTROPHY ASSOCIATION

    Private FoundationIRS data 2018–2024
    CHICAGO, ILEIN 131665552 Website

    Annual Giving

    $16.7M+12% YoY

    Grants

    175

    Median Grant

    $50K

    Organizations Funded

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    Foundation Overview

    Mission

    MDA's mission is to empower the people we serve to live longer, more independent lives. MDA is the #1 health nonprofit advancing research, care and advocacy for people living with muscular dystrophy, ALS, and related neuromuscular diseases

    Focus Areas

    medical researchmedical diagnosispatient registry supportuniversity-based biomedical researchhospital clinical researchinternational research funding

    Grant Types

    research grantsregistry support

    Funded Initiatives

    More than $1 billion committed since inception; funds about 200 research projects annually; 25 grants totaling $6.6 million in recent awards; $510,000 research grant awards for mitochondrial myopathies and ALS

    How to Apply

    Applications accepted for no more than $100,000 per year for 3 years; reviewed twice yearly by Research Advisory Committee; approximately 15% of proposals receive funding

    Does Not Fund

    Gene therapy exclusions for DMD patients with pathogenic mutations in N-terminal region of dystrophin; Clinical Research Network grants not accepting applications for 2025

    Based on publicly available information from the foundation's 990 filings and website.

    Giving History

    2024+12%

    $16.7M

    Grants

    175

    Median

    $50K

    States

    44

    2023+15%

    $14.9M

    Grants

    208

    Median

    $35K

    States

    48

    2022

    $13.0M

    Grants

    210

    Median

    $30K

    States

    48

    Financial Overview

    YearTotal AssetsGrants Paid
    2024
    $58.0M
    $16.7M(28.7%)
    2023
    $66.6M
    $14.9M(22.4%)
    2022
    $64.4M
    $13.0M(20.2%)
    2021
    $75.6M
    $13.7M(18.1%)
    2020
    $71.9M
    $15.0M(20.9%)

    Grants paid shown as percentage of total assets

    Network Intelligence

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    SciRise maps 4.8M+ grants across 16,000+ foundations to identify which ones are most likely to fund organizations like yours, based on who they already fund, not just what they say they fund.

    Data sourced from IRS 990 and 990-PF filings and publicly available foundation websites. Grant data, financial figures, and organizational details reflect historical filings and may not represent current operations or funding priorities. Verify directly with the foundation before applying. See an issue? Let us know.

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