AMYOTROPHIC LATERAL SCLEROSIS ASSN
Annual Giving
$16.6M-27% YoY
Grants
158
Median Grant
$25K
Organizations Funded
115
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Foundation Overview
Mission
The only national nonprofit fighting ALS on every front, through global research, care services, public policy work, and more. Goal is to make ALS livable for everyone, everywhere, until they can cure it.
Focus Areas
Grant Types
Funded Initiatives
Six new grants worth close to $2.4 million focused on preventing ALS; more than 150 active grants; over $160 million committed since 2014 supporting 580+ projects in U.S. and 19 countries
How to Apply
All programs require a letter of intent (LOI) followed by a full proposal (submitted by invitation only), which are reviewed through a rigorous, structured, and deliberative process. LOI includes scientific rationale, relevance to ALS, objectives and experimental plan.
Based on publicly available information from the foundation's 990 filings and website.
Giving History
$16.6M
Grants
158
Median
$25K
States
38
$22.8M
Grants
184
Median
$50K
States
40
$19.0M
Grants
240
Median
$47K
States
37
Grant Size Distribution
$25K
Typical Grant (Median)
$5K
Smallest
$15K
25th Pctile
$83K
75th Pctile
$5.4M
Largest
Excludes grants ≤ $5K. Half fall between $15K and $83K.
Largest Recent Grants
$5.4M
2024
Individual Grants (Aggregated)
Individual assistance program
$652K
2024
UNIVERSITY OF MIAMI
FL · BITNER PLANTE QUARTERLY GRANT FY25
$551K
2024
UNIVERSITY MEDICAL SERVICE ASSOCIATION INC
FL · BITNER PLANTE QUARTERLY GRANT FY25
$500K
2024
Foreign Grants - EUROPE
CLINICAL TRIAL AWARD
$443K
2024
Foreign Grants - EUROPE
CLINICAL TRIAL AWARD
Geographic Focus
Top states by total grant dollars. Based on IRS filing data.
Financial Overview
Grants paid shown as percentage of total assets
Data sourced from IRS 990 and 990-PF filings and publicly available foundation websites. Grant data, financial figures, and organizational details reflect historical filings and may not represent current operations or funding priorities. Verify directly with the foundation before applying. See an issue? Let us know.