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    AMYOTROPHIC LATERAL SCLEROSIS ASSN

    Private FoundationIRS data 2018–2024
    ARLINGTON, VAEIN 133271855 Website

    Annual Giving

    $16.6M-27% YoY

    Grants

    158

    Median Grant

    $25K

    Organizations Funded

    —

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    Foundation Overview

    Mission

    The only national nonprofit fighting ALS on every front, through global research, care services, public policy work, and more. Goal is to make ALS livable for everyone, everywhere, until they can cure it.

    Focus Areas

    amyotrophic lateral sclerosis researchclinical trialsdrug developmenttrial capacity buildingassistive technologypostdoctoral researchseed grantsclinical scientist development

    Grant Types

    clinical trial awardsdrug development contractsseed grantspostdoctoral fellowshipsscholarshipsindividual assistance grantspartnership program grantscenter of excellence annual fundinginvestigator-initiated awards

    Funded Initiatives

    Six new grants worth close to $2.4 million focused on preventing ALS; more than 150 active grants; over $160 million committed since 2014 supporting 580+ projects in U.S. and 19 countries

    How to Apply

    All programs require a letter of intent (LOI) followed by a full proposal (submitted by invitation only), which are reviewed through a rigorous, structured, and deliberative process. LOI includes scientific rationale, relevance to ALS, objectives and experimental plan.

    Based on publicly available information from the foundation's 990 filings and website.

    Giving History

    2024-27%

    $16.6M

    Grants

    158

    Median

    $25K

    States

    38

    2023+20%

    $22.8M

    Grants

    184

    Median

    $50K

    States

    40

    2022

    $19.0M

    Grants

    240

    Median

    $47K

    States

    37

    Financial Overview

    YearTotal AssetsGrants Paid
    2024
    $107.2M
    $16.7M(15.6%)
    2023
    $127.9M
    $22.9M(17.9%)
    2022
    $94.4M
    $18.7M(19.8%)
    2021
    $98.3M
    $15.3M(15.6%)
    2020
    $100.3M
    $13.7M(13.6%)

    Grants paid shown as percentage of total assets

    Network Intelligence

    Funding follows networks, not keywords

    SciRise maps 4.8M+ grants across 16,000+ foundations to identify which ones are most likely to fund organizations like yours, based on who they already fund, not just what they say they fund.

    Data sourced from IRS 990 and 990-PF filings and publicly available foundation websites. Grant data, financial figures, and organizational details reflect historical filings and may not represent current operations or funding priorities. Verify directly with the foundation before applying. See an issue? Let us know.

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