HUNTINGTON'S DISEASE SOCIETY

Private FoundationIRS data 2018–2024

NEW YORK, NYEIN 133349872 Website

Annual Giving

$3.2M-7% YoY

Grants

Median Grant

$33K

Organizations Funded

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Foundation Overview

Mission

To improve the lives of everyone affected by Huntingtons disease. Vision is a world free of Huntingtons disease. The premier nonprofit organization dedicated to improving the lives of everyone affected by HD through community services, education, advocacy and research

Focus Areas

huntington's disease researchmovement disorders researchneurodegenerative disease researchneuroscience researchmedical researchneurology researchpatient and community servicesuniversity and academic medical center research

Funded Initiatives

56 grants totaling $2,029,759 for Centers of Excellence network expansion in 2023. Previous year: 69 grants totaling $1,810,400. Berman-Topper family research fellowship provides three years of funding for young researchers. HD Human Biology Projects to advance understanding of disease mechanisms

Based on publicly available information from the foundation's 990 filings and website.

Giving History

2024-7%

$3.2M

Grants

Median

$33K

States

2023+26%

$3.4M

Grants

Median

$32K

States

2022

$2.7M

Grants

Median

$31K

States

Financial Overview

YearTotal AssetsGrants Paid

2024

$17.3M

$3.4M(19.5%)

2023

$18.1M

$3.7M(20.3%)

2022

$17.4M

$2.9M(16.9%)

2021

$15.8M

$2.9M(18.1%)

2020

$12.2M

$2.6M(21.4%)

Grants paid shown as percentage of total assets

Network Intelligence

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Data sourced from IRS 990 and 990-PF filings and publicly available foundation websites. Grant data, financial figures, and organizational details reflect historical filings and may not represent current operations or funding priorities. Verify directly with the foundation before applying. See an issue? Let us know.