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    HUNTINGTON'S DISEASE SOCIETY

    Private FoundationIRS data 2021–2024
    NEW YORK, NYEIN 133349872 Website

    Annual Giving

    $3.2M-7% YoY

    Grants

    68

    Median Grant

    $33K

    Organizations Funded

    45

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    Foundation Overview

    Mission

    To improve the lives of everyone affected by Huntingtons disease. Vision is a world free of Huntingtons disease. The premier nonprofit organization dedicated to improving the lives of everyone affected by HD through community services, education, advocacy and research

    Focus Areas

    huntington's disease researchmovement disorders researchneurodegenerative disease researchneuroscience researchmedical researchneurology researchpatient and community servicesuniversity and academic medical center research

    Funded Initiatives

    56 grants totaling $2,029,759 for Centers of Excellence network expansion in 2023. Previous year: 69 grants totaling $1,810,400. Berman-Topper family research fellowship provides three years of funding for young researchers. HD Human Biology Projects to advance understanding of disease mechanisms

    Based on publicly available information from the foundation's 990 filings and website.

    Giving History

    2024-7%

    $3.2M

    Grants

    68

    Median

    $33K

    States

    36

    2023+26%

    $3.4M

    Grants

    70

    Median

    $32K

    States

    35

    2022

    $2.7M

    Grants

    64

    Median

    $31K

    States

    35

    Grant Size Distribution

    $33K

    Typical Grant (Median)

    $8K

    Smallest

    $20K

    25th Pctile

    $48K

    75th Pctile

    $300K

    Largest

    Excludes grants ≤ $5K. Half fall between $20K and $48K.

    Largest Recent Grants

    $300K

    2024

    THE REGENTS OF THE UNIVERSITY OF CALIFORNIA IRVINE

    CA · COMMUNITY SERVICES

    $276K

    2024

    REGENTS OF THE UNIVERSITY OF CA SAN DIEGO

    CA · COMMUNITY SERVICES

    $180K

    2024

    NEW YORK UNIVERSITY GROSSMAN SCHOOL OF MEDICINE

    NY · COMMUNITY SERVICES

    $180K

    2024

    THE GENERAL HOSPITAL CORPORATION

    MA · COMMUNITY SERVICES

    $161K

    2024

    Foreign Grants - NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES

    MEDICAL RESEARCH

    Geographic Focus

    CA
    $819K8 grants
    NY
    $362K6 grants
    MA
    $275K4 grants
    OH
    $121K3 grants
    FL
    $97K4 grants

    Top states by total grant dollars. Based on IRS filing data.

    Financial Overview

    YearTotal AssetsGrants Paid
    2024
    $17.3M
    $3.4M(19.5%)
    2023
    $18.1M
    $3.7M(20.3%)
    2022
    $17.4M
    $2.9M(16.9%)
    2021
    $15.8M
    $2.9M(18.1%)

    Grants paid shown as percentage of total assets

    Network Intelligence

    Funding follows networks, not keywords

    SciRise maps 4.8M+ grants across 16,000+ foundations to identify which ones are most likely to fund organizations like yours — based on who they already fund, not just what they say they fund.

    Data sourced from IRS 990 and 990-PF filings and publicly available foundation websites. Grant data, financial figures, and organizational details reflect historical filings and may not represent current operations or funding priorities. Verify directly with the foundation before applying. See an issue? Let us know.

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