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    RETT SYNDROME RESEARCH TRUST INC

    Private FoundationIRS data 2018–2024
    TRUMBULL, CTEIN 260687439 Website

    Annual Giving

    $5.1M-51% YoY

    Grants

    18

    Median Grant

    $106K

    Organizations Funded

    —

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    Foundation Overview

    Mission

    The Rett Syndrome Research Trust (RSRT) is the patient advocacy organization working to cure Rett syndrome. RSRT was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders.

    Focus Areas

    rett syndrome researchrna/dna editingreadthrough therapymecp2 duplication syndromebiorepositorypatient registriesmouse modelsclinical trials

    Grant Types

    research grantsclinical trial supportregistry/biobank infrastructure fundingconsortium/collaborative grants

    Funded Initiatives

    ProQR Therapeutics $8.1M RNA editing collaboration; UMass Chan $2.3M for new research; gene therapy programs currently in clinical trials were started and incubated at RSRT

    How to Apply

    Submit short letter of intent to Monica Coenraads outlining project, timeline, and budget estimate. No traditional funding calls - accepts unsolicited proposals at any time.

    Based on publicly available information from the foundation's 990 filings and website.

    Giving History

    2024-51%

    $5.1M

    Grants

    18

    Median

    $106K

    States

    1

    2023+168%

    $10.3M

    Grants

    18

    Median

    $101K

    States

    6

    2022

    $3.8M

    Grants

    23

    Median

    $125K

    States

    11

    Financial Overview

    YearTotal AssetsGrants Paid
    2024
    $20.4M
    $9.4M(45.9%)
    2023
    $18.5M
    $9.9M(53.8%)
    2022
    $14.9M
    $2.1M(13.9%)
    2021
    $13.6M
    $3.2M(23.4%)
    2020
    $12.0M
    $1.5M(12.7%)

    Grants paid shown as percentage of total assets

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    Data sourced from IRS 990 and 990-PF filings and publicly available foundation websites. Grant data, financial figures, and organizational details reflect historical filings and may not represent current operations or funding priorities. Verify directly with the foundation before applying. See an issue? Let us know.

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