RETT SYNDROME RESEARCH TRUST INC

Private FoundationIRS data 2022–2024

TRUMBULL, CTEIN 260687439 Website

Annual Giving

$5.1M-51% YoY

Grants

Median Grant

$106K

Organizations Funded

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Foundation Overview

Mission

The Rett Syndrome Research Trust (RSRT) is the patient advocacy organization working to cure Rett syndrome. RSRT was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders.

Focus Areas

rett syndrome researchrna/dna editingreadthrough therapymecp2 duplication syndromebiorepositorypatient registriesmouse modelsclinical trials

Grant Types

research grantsclinical trial supportregistry/biobank infrastructure fundingconsortium/collaborative grants

Funded Initiatives

ProQR Therapeutics $8.1M RNA editing collaboration; UMass Chan $2.3M for new research; gene therapy programs currently in clinical trials were started and incubated at RSRT

How to Apply

Submit short letter of intent to Monica Coenraads outlining project, timeline, and budget estimate. No traditional funding calls - accepts unsolicited proposals at any time.

Based on publicly available information from the foundation's 990 filings and website.

Giving History

2024-51%

$5.1M

Grants

Median

$106K

States

2023+168%

$10.3M

Grants

Median

$101K

States

2022

$3.8M

Grants

Median

$125K

States

Grant Size Distribution

$106K

Typical Grant (Median)

$15K

Smallest

$92K

25th Pctile

$248K

75th Pctile

$1.2M

Largest

Excludes grants ≤ $5K. Half fall between $92K and $248K.

Largest Recent Grants

$1.2M

2024

MIT

CT · RETT RESEARCH

$1.1M

2024

Foreign Grants - NETHERLANDS

Foreign assistance program

$781K

2024

UNIVERSITY OF MASSACHUSETTS

CT · RETT RESEARCH

$425K

2024

EMORY UNIVERSITY

CT · RETT RESEARCH

$250K

2024

CALIFORNIA INSTITUTE OF TECHNOLOGIES

CT · RETT RESEARCH

Geographic Focus

$3.9M16 grants

Top states by total grant dollars. Based on IRS filing data.

Financial Overview

YearTotal AssetsGrants Paid

2024

$20.4M

$9.4M(45.9%)

2023

$18.5M

$9.9M(53.8%)

2022

$14.9M

$2.1M(13.9%)

Grants paid shown as percentage of total assets

Network Intelligence

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Data sourced from IRS 990 and 990-PF filings and publicly available foundation websites. Grant data, financial figures, and organizational details reflect historical filings and may not represent current operations or funding priorities. Verify directly with the foundation before applying. See an issue? Let us know.