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    THE PARENT PROJECT FOR MUSCULAR

    Private FoundationIRS data 2022–2024
    WASHINGTON, DCEIN 311405490 Website

    Annual Giving

    $2.6M+5% YoY

    Grants

    32

    Median Grant

    $45K

    Organizations Funded

    26

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    Foundation Overview

    Mission

    PPMD's mission is to end Duchenne. They accelerate research, raise their voices in Washington, demand optimal care for all young men, and educate the global community.

    Focus Areas

    duchenne muscular dystrophygene therapynewborn screeningbiomarkersbiobankpreclinical therapeutic assessmentclinical trialscardiac research (pediatric/duchenne)

    Grant Types

    research grantspreclinical research fundingclinical trial fundingfellowshipsmeeting/conference supportcare center operational/maintenance awardspatient assistance/exceptional needs grantsbiobank/infrastructure support

    How to Apply

    Contact via telephone 888.520.8675 option 1, email decode@parentprojectmd.org, or fax 404.935.0636. CDCC application process exists but details not found.

    Based on publicly available information from the foundation's 990 filings and website.

    Giving History

    2024+5%

    $2.6M

    Grants

    32

    Median

    $45K

    States

    15

    2023

    $2.5M

    Grants

    22

    Median

    $58K

    States

    14

    2022

    $2.5M

    Grants

    27

    Median

    $35K

    States

    14

    Grant Size Distribution

    $45K

    Typical Grant (Median)

    $7K

    Smallest

    $24K

    25th Pctile

    $81K

    75th Pctile

    $617K

    Largest

    Excludes grants ≤ $5K. Half fall between $24K and $81K.

    Largest Recent Grants

    $617K

    2024

    CINCINNATI CHILDREN'S HOSPITAL MC

    OH · RESEARCH- ACTION NETWORK GRANT

    $300K

    2024

    UNIVERSITY OF FLORIDA FOUNDATION

    FL · RESEARCH - PRECLINICAL THERAPEUTIC ASSESSMENT LAB

    $210K

    2024

    UNIVERSITY OF ROCHESTER MEDICAL CENTER

    NY · RESEARCH - NEWBORN SCREENING

    $200K

    2024

    NYU LANGONE HEALTH

    NY · RESEARCH - GENE THERAPY

    $179K

    2024

    UNIVERSITY OF FLORIDA

    FL · RESEARCH - WELLSTONE SUPPLEMENT

    Geographic Focus

    OH
    $884K7 grants
    FL
    $519K3 grants
    NY
    $510K3 grants
    AZ
    $100K1 grants
    CA
    $83K3 grants

    Top states by total grant dollars. Based on IRS filing data.

    Financial Overview

    YearTotal AssetsGrants Paid
    2024
    $12.6M
    $2.7M(21.1%)
    2023
    $10.4M
    $2.6M(24.5%)
    2022
    $8.6M
    $2.6M(30.4%)

    Grants paid shown as percentage of total assets

    Network Intelligence

    Funding follows networks, not keywords

    SciRise maps 4.8M+ grants across 16,000+ foundations to identify which ones are most likely to fund organizations like yours — based on who they already fund, not just what they say they fund.

    Data sourced from IRS 990 and 990-PF filings and publicly available foundation websites. Grant data, financial figures, and organizational details reflect historical filings and may not represent current operations or funding priorities. Verify directly with the foundation before applying. See an issue? Let us know.

    Questions?