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    FRIEDREICH'S ATAXIA RESEARCH ALLIANCE

    Private FoundationIRS data 2022–2024
    SPRINGFIELD, VAEIN 522122720 Website

    Annual Giving

    $10.4M+12% YoY

    Grants

    60

    Median Grant

    $100K

    Organizations Funded

    26

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    Foundation Overview

    Mission

    FARA funds and facilitates research to slow, stop, reverse, and cure Friedreich's ataxia. Mission-driven, collaborative community dedicated to supporting the advancement of research that drives the development of treatments for people living with FA.

    Focus Areas

    friedreich's ataxia researchmedical researchbiomedical researchdisease awarenessindividual assistance

    Grant Types

    research grantsindividual grantsawareness/education grants

    Funded Initiatives

    General Research Grants up to $125,000 per year. Postdoctoral Fellowship Grants. Named awards including Keith Michael Andrus Cardiac Award, Kyle Bryant Translational Research Award, Bronya J. Keats Research Collaboration Award.

    How to Apply

    Scientists submit letter of intent (LOI) through submission portal. LOI deadlines February 15 and August 15. If accepted, detailed application due April 1 and September 15. Grant amounts range $100,000-$250,000 for up to two years.

    Based on publicly available information from the foundation's 990 filings and website.

    Giving History

    2024+12%

    $10.4M

    Grants

    60

    Median

    $100K

    States

    13

    2023

    $9.3M

    Grants

    43

    Median

    $108K

    States

    12

    2022

    $9.2M

    Grants

    46

    Median

    $104K

    States

    11

    Grant Size Distribution

    $100K

    Typical Grant (Median)

    $5K

    Smallest

    $61K

    25th Pctile

    $188K

    75th Pctile

    $1.9M

    Largest

    Excludes grants ≤ $5K. Half fall between $61K and $188K.

    Largest Recent Grants

    $1.9M

    2024

    THE BROAD INSTITUTE

    MA · MEDICAL RESEARCH

    $714K

    2024

    CHILDREN'S HOSPITAL OF PHILADELPHIA RESEARCH INSTITUTE

    PA · MEDICAL RESEARCH

    $500K

    2024

    CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION

    PA · MEDICAL RESEARCH

    $418K

    2024

    Foreign Grants - EAST ASIA AND THE PACIFIC

    MEDICAL RESEARCH

    $407K

    2024

    Foreign Grants - EUROPE

    MEDICAL RESEARCH

    Geographic Focus

    MA
    $3.1M7 grants
    PA
    $1.2M3 grants
    CA
    $840K6 grants
    NY
    $561K4 grants
    FL
    $459K2 grants

    Top states by total grant dollars. Based on IRS filing data.

    Financial Overview

    YearTotal AssetsGrants Paid
    2024
    $6.9M
    $10.5M(150.7%)
    2023
    $7.8M
    $9.3M(120.1%)
    2022
    $7.3M
    $9.2M(127.2%)

    Grants paid shown as percentage of total assets

    Network Intelligence

    Funding follows networks, not keywords

    SciRise maps 4.8M+ grants across 16,000+ foundations to identify which ones are most likely to fund organizations like yours — based on who they already fund, not just what they say they fund.

    Data sourced from IRS 990 and 990-PF filings and publicly available foundation websites. Grant data, financial figures, and organizational details reflect historical filings and may not represent current operations or funding priorities. Verify directly with the foundation before applying. See an issue? Let us know.

    Questions?